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Cystic Fibrosis, Ponderings

Game of pretend

Saturday the 23rd of November, 2019

I’m feeling rather dishevelled and slightly gnarled, and I’m tired of trying to feel okay. It feels like there is no room to be me, like life is a game of pretend. I pretend that meeting up for coffee or lunch at that cosy cafe is a piece of cake when, in reality, it is …

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Cystic Fibrosis, Singing

Salty Girls Sing Better

Tuesday the 11th of June, 2019

About six years ago, I received a website and t-shirt design from three of my friends as a birthday present. Something that resulted in Salty Girls Taste Better. Today, I’m happy to announce a second t-shirt design, Salty Girls Sing Better. The profit will go towards the sINgSPIRE Virtual Choir. A project that has helped …

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Cystic Fibrosis, Ponderings

Hold it without shame

Tuesday the 7th of May, 2019

I’ve been forced to do some real soul-searching lately. I’m trying so hard to create meaning (which, en passant, I have to find a whole new definition for), keep up with others, and prove that I don’t let CF stop me, that I end up missing out because I completely exhaust myself and all my …

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