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Ponderings

Magnified and sanctified, be thy holy name

Thursday the 7th of November, 2024

Leonard Cohen’s words linger, like whispers of life’s secrets just out of reach. His music, his poetry – they tug at the threads of all that endures: life, faith, love, death. Every line he wrote feels boundless yet so near, as if he wasn’t merely speaking to us but with us – sharing in the …

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Cystic Fibrosis

The unravelling

Monday the 21st of October, 2024

It feels like a lifetime ago that I was pulling myself up the climbing walls – but it wasn’t, not really. Just last year, I was still at it. Though I was gasping like an asthmatic hamster, there was a buzz in knowing I could keep going, keep fighting through. It felt like a battle …

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Cystic Fibrosis

The air we bear

Saturday the 22nd of June, 2024

When I write more extensively than just notes about my day or health, I often delve into the depths of my spirit, my feelings, and my thoughts. This time I want to explore what’s happening in my physical body as well. However, the two are so closely intertwined that I cannot write about my body …

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Cystic Fibrosis, Singing

There’s a mountaintop 

Monday the 3rd of June, 2024

Recording our latest sINgSPIRE virtual choir song, There’s a Mountaintop, was quite the endeavour! I had to split the vocals into so many parts that our audio engineer, Pete White, undoubtedly needed a strong cup of tea afterwards. I could almost see him rubbing his temples as he painstakingly pieced everything together. Unfortunately, the video …

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Ponderings

UniVerse

Friday the 24th of May, 2024

Forty-fourThere once was a gal growing old,Whose body felt terribly cold.With each creaky wheeze,She’d laugh with a tease,“Forty-four is pure gold, I’m told!”Her lungs may have lost their fine flair,And solitude seemed quite the scare.With each little cough,She’d jokingly scoff,“At least there’s still some life to spare!”She’d say with a twinkle so bright,”Though dark now, …

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Cystic Fibrosis

Voilà, regardez-moi

Saturday the 27th of April, 2024

You might occasionally find me looking quite despondent, and it’s not just due to the typical dreary weather or the dismal state of the world. It’s the overwhelming effort each breath demands that tends to dampen my spirits, despite employing every strategy imaginable to manage daily life. Sleep rarely offers respite, feeling as taxing as …

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Ponderings

Above the Clouds

Friday the 29th of March, 2024

In a world that occasionally spins a tad too quickly, there exists a unique kind of peace. I find it high above the ground, on a ski lift, with my husband by my side. Here we are far removed from the madding life below. The stillness is punctuated only by the soft whir of the …

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Cystic Fibrosis, Ponderings

Echoes of loneliness

Tuesday the 28th of November, 2023

Earlier this autumn, I was fortunate enough to experience Luke Jerram’s Gaia. Beneath the glow of the globe, every breath was a testament to both actuality and resistance. In that moment, loneliness was not just a feeling, but a palpable presence, a silent companion as we hurtle through the cosmos. Gaia’s presence served as a …

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