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Tag: haemoptysis

Cystic Fibrosis

The unravelling

Monday the 21st of October, 2024

It feels like a lifetime ago that I was pulling myself up the climbing walls – but it wasn’t, not really. Just last year, I was still at it. Though I was gasping like an asthmatic hamster, there was a buzz in knowing I could keep going, keep fighting through. It felt like a battle …

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Cystic Fibrosis

Thin as rice paper

Thursday the 20th of July, 2023

Once a month or so, I meet up with some friends to tell stories. It’s a lot like a book club, but instead of reading a book we draw a prompt from our storytelling cards from The Moth. Last time we met, the prompt was Burnt: when the candle burns at both ends. Life and …

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Cystic Fibrosis

The destroyer

Thursday the 1st of December, 2022

It’s not easy to accept this disease for what it is, a destroyer; causing so much pain, both physical and emotional. Even so, as I share this from my journal, just remember that I’m a proper bitch! This is just a glimpse into what’s been going on. Besides, now, a fortnight later, I have regained …

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