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The destroyer

Author: Johanna
Published on: Thursday the 1st of December, 2022

It’s not easy to accept this disease for what it is, a destroyer; causing so much pain, both physical and emotional. Even so, as I share this from my journal, just remember that I’m a proper bitch! This is just a glimpse into what’s been going on. Besides, now, a fortnight later, I have regained some control over my life thanks to diligent doctors and excellent healthcare. I might even go climbing next week.

Friday the 18th of November 2022

The morning started quite well. I felt alright – not brilliant, but not terrible either. Physio cleared my lungs pretty well. Around lunch, I attended a meeting with Murre, one of the candidates for the Centre Party’s upcoming leadership election. After we finished, I headed straight to the climbing gym, feeling rather sparky. Though, that feeling would soon prove fleeting.

Walking down the hallway towards the reception, I felt the ominous and all-too-familiar bubbly sensation in my left lung – a harbinger of haemoptysis. True to form, my mouth filled with blood. I hurried to the loo, hoping to go unnoticed. The next cough forced its way up before I reached the sink, and well, gore ended up on the floor. Lovely!

I kept hacking for a while – don’t know for how long, but long enough to get frightened. When the bleed finally seemed to settle, I cleaned up the floor, the sink, and myself as best I could. Needless to say, the sparky feeling had completely vanished. Anyway, the floor has this non-slip texture, making it impossible to wipe clean with just tissue – and, of course, the bog roll ran out. I had no choice but to ask for help.

I absolutely loathe having to ask for help.

S, one of the gym owners, mopped the floor and made me a cup of tea. I coughed some more – managing to keep it to the sink this time. It ended up being quite a significant amount of blood in the end (big bleeds are traumatic, and I doubt I was able to hide it). He asked if I needed to go to the hospital – I said no.

I was already mortified having someone clean up after me or even just seeing my mess. I wasn’t willing to admit to needing more help. Foolish and downright dangerous – lung bleeds are terrifying and sometimes deadly. They can become so severe that you can’t clear your lungs fast enough to avoid drowning in your own blood – a wonderful mental image. There’s nothing you can do in that moment to make it stop, other than hoping it’s not your time to die. Calling the hospital is sensible, which I did in the end. I’m sure I’ll be on the mend soon, but I’m gutted and so done pretending to be strong.

Now I don’t know if I’ll ever be able to show my face at the gym comfortably again. I worry they’ll think differently of me. Look at me differently. Be frightened of me. I’m a bloody walking time bomb!

The full featured picture for this post in case you’re reading this on your phone and missing out. Also, here’s more info about the painting.

cystic fibrosis haemoptysis

A page too white and ink too thin
Catch me when I fall

 
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