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Tag: poetry

Ponderings

UniVerse

Friday the 24th of May, 2024

Forty-fourThere once was a gal growing old,Whose body felt terribly cold.With each creaky wheeze,She’d laugh with a tease,“Forty-four is pure gold, I’m told!”Her lungs may have lost their fine flair,And solitude seemed quite the scare.With each little cough,She’d jokingly scoff,“At least there’s still some life to spare!”She’d say with a twinkle so bright,”Though dark now, …

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Cystic Fibrosis

A page too white and ink too thin

Wednesday the 16th of November, 2022

I shift through phases where I feel the need to describe my world, because living in an undescribed world is too lonely. I’ve spent so much time grappling with this disease, and naturally, it has shaped me. Yet, I can’t quite suss out how to integrate the complications of it into the world around me. …

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Ponderings

On oublie notre histoire

Tuesday the 13th of September, 2022

September: the first autumn month and often the month of the Jewish New Year. Every four years, it’s also the month of three Swedish elections (general, regional, and municipal). Every election brings anguish and heartbreak for some. Resigning from my political engagements earlier this year has saved me from some of the agony. I haven’t …

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Cystic Fibrosis, Ponderings

I want to live boldly

Friday the 11th of June, 2021

The sun’s been out for a while now, bringing everything and everyone to life, like a shower of energy. It makes me leap out of bed in the mornings, warms my skin, and soothes my soul. It fills me with hope! Yet, I’m in an odd place emotionally right now – probably because I’m a …

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Cystic Fibrosis, Ponderings

April is the cruellest month

Friday the 9th of April, 2021

I’m halfway through week three of intravenous antibiotics, and it’s taking its toll. I’m feeling quite worn down, and life is heavy. Sometimes it’s difficult to distinguish between the side effects of the drugs and the infection, and I can’t shake the fear that I’ll finish this course of IVs and still feel sick. This …

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Cystic Fibrosis, Ponderings

Game of pretend

Saturday the 23rd of November, 2019

I’m feeling rather dishevelled and slightly gnarled, and I’m tired of trying to feel okay. It feels like there is no room to be me, like life is a game of pretend. I pretend that meeting up for coffee or lunch at that cosy cafe is a piece of cake when, in reality, it is …

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